Prostate Cancer Survivors






This forum is for the discussion of anything to do with Prostate Cancer.
There are only four rules:

  • No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
  • No harvesting e-mail addresses for Spam;
  • No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
  • Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making

Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.

Since this is an International Forum, please specify your location in your post.

General Forum
Start a New Topic 
View Entire Thread
Re: Re: Newly diagnosed, T1C

Sorry we didn't answer your original concerns adequately, Frank.

Can I suggest you read two bits by PCa author and activist Donna Pogliano. The first was in response to a man with a very similar diagnosis to yours and it can be found at

Never one to mince words she opens up with this little salvo From what I'm reading here, you're thinking of undergoing local treatment for one silly millimeter of prostate cancer?

If what you posted about your situation is correctly stated, this is what is meant by "insignificant disease". When they talk about prostate cancer being overdiagnosed and overtreated, they're talking about YOU!

The medical profession may have lured you into the medical mill with a positive biopsy, but you DO still have the option of removing yourself from the treadmill of diagnosis-by-biopsy followed by immediate-local-treatment. I'm sure that either a surgeon or a radiation oncologist would be delighted to treat you because if they only treated patients with your extent of disease their stats would be lookin' REALLY GOOD!

Another of her many excellent posts is here which she conlcudes with:

So, start educating yourself further. You have time. You don't need to rush into a treatment decision you may live to regret, particularly if your staging to determine extent of disease is not yet complete. There are other treatment options including other forms of radiation, other combination protocols, androgen deprivation therapy as primary treatment and a whole bunch of stuff to know, some of which is essential and some of which is relatively more optional. At minimum, you should:

- Have your Gleason verified by an expert
- Answer the question: Do I really need to be treated or am I a candidate for giving Watchful Waiting a try?
- If immediate treatment is indicated based on thorough staging of the extent and nature of disease, be sure the procedure is done by an expert.
- If you are considering local treatment you need to be fully informed regarding the details of how the procedure is conducted, what the side effects are, what the probability of recurrence is likely to be, what the financial ramifications of your treatment are and how they will be handled, and what salvage options are available to you if primary treatment should be unsuccessful.
- If you are considering a form of local treatment you need to know how your present age, other health issues, urinary status and priorities figure into the equation.

Proper selection of the patient for a treatment protocol, proper preparation of the patient for the treatment protocol, and minimizing side effects and maximizing the potential for successful treatment by enlisting an expert physician are essential elements in our attempt to optimize outcomes.

Hope this is more helpful

All the best

Terry in Australia

Re: Newly diagnosed, T1C

Thanks again Terry. This site has been very useful to me and my family.