Prostate Cancer Survivors






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On diagnosis I had a stage 3c, gleeson 9, psa 28 cancer. I had androcur and radiation therapy, then moved to lucrin, monthly. Lucrin was suspended when my psa was 0.1. When the psa rose to 6, lucrin was recommenced, but the 3 monthly dose. This led to pulmonary and peripheral oedema. At first I did not recognise the problem, believing breathlessness was due to a long-standing asthma condition. Unfortunately some heart damage has occured. I want to know if anyone else has had this problem. Will the oedema persist or go with the medication prescribed for it? Is the heart damage reversable? I am 72 and otherwise fit.

Re: lucrin


What you describe sounds a lot like what happened to me, but before I was on ADT (Androgen Deprivation Therapy)

I started having episodes of breathlessness, especially at night, but also when exercising. I put the latter down to having lost a bit of fitness and the former to some extremely hot weather, which made sleeping uncomfortable. But the condition got steadily worse and I finally sought medical advice (reluctantly because of my deep seated lack of respect for the ability of many medical people).

The MD I consulted diagnosed me as likely having adult onset asthma and prescribed a ‘puffer’. I was just trying that out when an old friend called – he had been our family doctor years before – and asked me what was going on. I told him and his instructions were to get to an ER of a hospital with a cardiac unit without any delay. Naturally, I demurred, at least until he had spoken to my wife, following which I was off to the ER.

I was diagnosed as suffering idiopathic cardiomyopathy (idiopathic meaning, according to the very nice cardiologist, that they didn’t have a clue as to what had caused the problem. That was two years ago and after several regular check-ups I am dong fine on the medication prescribed. I’ve had no more breathlessness episodes, except when it gets very hot – above 95F (35C) – when I do have problems.

What was the diagnosis of your heart condition and what medication are you on?

All the best

Terry in Melbourne, Australia