This forum is for the discussion of anything to do with Prostate Cancer. There are only four rules:
No fundraisers, no commercials (although it is OK to recommend choices of treatment or medical people based on your personal research; invitations to participate in third-party surveys are also acceptable, provided there is no compensation to YANA);
No harvesting e-mail addresses for Spam;
No insults or flaming - be polite and respectful at all times and understand that there may be a variety of points of view, all of which may have some validity;
Opinions are OK, but please provide as much factual evidence as possible for any assertions that you are making
Failure to abide by these simple rules will result in the immediate and permanent suspension of your posting privileges.
Since this is an International Forum, please specify your location in your post.
I have done further research since my original post.
It appears that the treatment I am receiving is the most appropriate for my circumstances.
An article in the Prostate Cancer Research Institute newsletter states that IMRT alone is better suited if the cancer is suspected to be outside the prostate.
If it may be in the seminal vesicles or prostate bed, a full course of IMRT is indicated. This is also the preferred technique if the patient is to receive "whole pelvic" radiation to include the lymph nodes.
My PSA at diagnosis was very high and my Gleason score was 7. I have received 25 treatments to the pelvic region and 20 more treatments for prostate only boost. The total will be 8100 cGy.
Even with the wider "whole pelvic" fields, the side effects have been minor. Considering how much dosage I am getting that's pretty remarkable.
I guess I am getting what I need, and I'm thankful that I am not experiencing the difficulty that some men get when the seed boost is included.
I just take nothing for granted and insist on knowing exactly what the doctors are doing and why.
I think you ARE getting the best possible treatment.
I believe my 37 RT treaments were delivered with total accuracy. I had seminal vesicle and pelvic wall involvement, and like you was high risk....PSA 182, T4 tumour.
Of course, I also had hormone therapy, but all that ended after 30 months, and now, 20 weeks of no meds at all see me with a PSA of still less than 1.0 while my testosterone has risen well, now back in the normal range at 20.