Prostate Cancer Survivors

 

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This forum is for the discussion of anything to do with Prostate Cancer.
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YANA updates to June 16, 2011

It seems there may have been trouble again during the past few weeks with Spam filters, particularly for Comcon users and, possibly AOL. If you have submitted your story or an update and it has not yet been published, please mail me at terryherbert42@gmail.com


NEW POSTS:

DAVID BAGNALL newly diagnosed and still undecided

PAUL T chose PBT (Proton Beam Therapy) for his April 2011 diagnosis

CHARLES NIERLING recently diagnosed and undecided – leaning towards PBT (Proton Beam Therapy)

GLEN L bitterly regrets his RALP (Robotic Assisted Laparoscopic Surgery) choice and loss of erectile function

BUCCI GAMMS the third of three brothers to have a prostate cancer diagnosis he is recovering from RALP (Robotic Assisted Laparoscopic Surgery) but is fed up with his treatment

PATRICK CALLAHAN chose Brachytherapy with neo-adjuvant ADT (Androgen Deprivation Therapy)

PETER LLEWELLYN our first Maltese resident chose IMRT (Intensity Modulated Radiation Therapy) with neo adjuvant ADT (Androgen Deprivation Therapy)

STEPHEN B chose Brachytherapy with neo-adjuvant ADT (Androgen Deprivation Therapy)



UPDATES FROM MEMBERS:

PAUL M four years after RALP, PSA is undetectable and ED is only minor

DENNIS DENNISURE Silver Member has been accepted for Provenge after ADT (Androgen Deprivation Therapy) failure following RP (Radical Prostatectomy) and EBRT (External Beam Radiation Therapy) and attempts to stop his incontinence

SCOTT RUSH is holding off the Brachytherapy and considering AS (Active Surveillance)

ARNE SOEDERKVIST Gold Three star member has been on ADT (Androgen Deprivation Therapy) holiday since December 2009 but PSA is slowly rising

MEL PANTHERSFAN PSA stable two years after PBT (Proton Beam Therapy) – some slight proctitis and ED issues

JOHN HAYES another increase in his PSA – to 6.4 ng/ml – has him moving from AS (Active Surveillance) to RALP (Robotic Assisted Laparoscopic Prostatectomy)

LARRY E still on ADT (Androgen Deprivation Therapy) eighteen months after RALP (Robotic Assisted Laparoscopic Prostatectomy) and concerns about lymph node involvement

PAT PRIESTLEY after going back to his pomegranate regimen his PSA has fallen back to previous levels

ROGER CARNELL continues with AS (Active Surveillance) after a cystoscopy report on his microscopic hematuria

ALLAN MURRAY PSA still undetectable after his RP (Radical Prostatectomy)

JOHN COLEMAN Gold Three Star member diagnosed in 1998 with GS 7 T3 PSA 27 chose ADT (Androgen Deprivation Therapy) and EBRT (External Beam Radiation Treatment) and has been on ADT vacation for some years

GEORGE HARDY back on ADT (Androgen Deprivation Therapy) in the face of a rising PSA after a long ADT vacation after his EBRT (External Beam Radiation Therapy) for a GS 6 T4 PSA 182 he is looking for other long term survivors with high PSA

JOHAN MEYER PSA still undetectable six years after RP (Radical Prostatectomy)

NEILCONNELL nine years after his RP (Radical Prostatectomy) his ED and continence are still there and he now has a rising PSA

JEFF NOVAK has had 17 out of 45 zaps at Loma Linda in his PBT (Proton Beam Therapy) coice after 12 months AS (Active Surveillance)

ARTHUR CLAYTON still has an undetectable PSA 18 months after RP (Radical Prostatectomy)

JAKE K thirteen months after SRT (Salvage Radiation Therapy) for failed RALP (Robotic Assisted Laparoscopic Prostatectomy) has an undetectable PSA

CHRISTOPHER CHRIS after some very poor diagnostic work and three surgeon urologists suggested RP (Radical Prostatectomy) for his GS 9 PSA 84 diagnosis is now heading for IMRT (Intensity Modulated Radiation Therapy) in July and possibly joining GTx trial

MIKE HASSEL SHEARER PSA still undetectable after RALP (Robotic Assisted Laparoscopic Prostatectomy) but has ED

LORENZO Q SQUARF while not exactly a Member, Squarf has some interesting things to say about the fourteen years that have passed since he refused a biopsy after an elevated PSA

MIKE MCINERNEY PSA still undetectable but has ED after RP (Radical Prostatectomy)

KEVIN COLLISON PSA undetectable after RALP (Robotic Assisted Laparoscopic Surgery) – no side effects

DAVID F007 one year after RALP (Robotic Assisted Laparoscopic Prostatectomy) and PSA is undetectable and sexual function ‘pretty good’

SIX GLEASON has had an upward blip in his PSA after four years on AS (Active Surveillance)

RUSS SUERETH Gold One Star Member back on ADT (Androgen Deprivation Therapy) after three year ‘vacation’ following failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Treatment)

TERRY FEE PSA still undetectable – some ED issues after his RP (Radical Prostatectomy)

BOB PARSONS PSA down again – still swears by diethylstilboestrol (DES) as his principle manager after nine years

E G B PSA down to 0.20 after successful HIFU (High Intensity Focused Ultrasound) and ED is fully a thing of the past

DOUG G recovering well from RALP (Robotic Assisted Laparoscopic Surgery)

DAVID WHITEHOUSE another undetectable PSA and no side effects after RALP (Robotic Assisted Laparoscopic Surgery)

TOM JOHNSON Platinum Member PSA dropped again after stopping Megace

NEW LINK/ NEW PIC

I have included a link on the NICE (National Institute for Health and Clinical Excellence Guide on the CHOOSING A TREATMENT page. This Guide with the NCCN Guide are designed for use by the medical profession but can be very helpful in the process of gaining an understanding about options

And finally, just a small addition to TROOPC for those who need a smile


All the best

Terry in Australia

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