Prostate Cancer Survivors

 

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Updates and New Entries

Apologies for the delay in posting these entries. I have been out and about with visitors who came to see a bit of Australia. I’m up to items sent in on Monday October 4 and hope to catch up by the end of the weekend

NEW POSTS:
TODD TEN EYCK chose Taxotere after failed RP (Radical Prostatectomy) now considering ADT (Androgen Deprivation Therapy)

ANDREW MCCONNELL on intermittent ADT (Androgen Deprivation Therapy) since May after diagnosis in 2008

BRYAN METCALF joins as a four star Gold member – diagnosed in 1996, a vintage year!! – has battled through various trials after his failed RP and is currently stabilized on DES (diethylstilbestrol)

RON MILLER four years out from RP (Radical Prostatectomy) which he says improved his sexual activity

PARKER ROBINSON has been given a 10% chance of survival for a GS 7 diagnosis with a high PSA and has chosen neo adjuvant ADT (Androgen Deprivation Therapy) and EBRT (External Beam Radiation Therapy)

ALAN MEYER joins us as a Silver member – diagnosed in 2003 and choosing HDR (High Dose Radiation Brachytherapy) plus EBRT (External Beam Radiation Therapy) and ADT (Androgen Deprivation Therapy)

BOB THURMOND chose RALP (Robotic Assisted Laparoscopic Prostatectomy) three years ago: undetectable PSA plus ED


UPDATES FROM MEMBERS
FRANK F has just completed EBRT (External Beam Radiation Therapy) after failed RALP (Robotic Assisted Laparoscopic Prostatectomy)

TIM GODFREY eleven months after his RP (Radical Prostatectomy) he is still battling ED – and possibly Peyronie’s

SAM FULLERTON Silver member – diagnosed in 2002 when he chose EBRT (External Beam Radiation Therapy) still has minimal side effects and a stable, low PSA

JOHN M happy with the continuing drop in PSA after PBT (Proton Beam Therapy) in Florida

DAVID HERITAGE diagnosed in 2008 with a PSA of 266, T4 staging he took an ADT (Androgen Deprivation Therapy) vacation from Zoladex in 2009 but a rising PSA put him back onto Casodex

DEAN BUCK a bit concerned about his PSA levels but no side effects after PBT (Proton Beam Therapy) in Florida in 2009

DAVID N is confused by conflicting advice from experts – should he have adjuvant ADT (Androgen Deprivation Therapy) after apparently successful RP (Radical Prostatectomy) for GS 9 tumour?

KEITH TWEED rejected for NanoKnife he chooses PBT (Proton Beam Therapy)

JIM WILSON went ahead with his RP (Radical Prostatectomy) and is recovering well

KLAUS VON HAGEN very concerned about the prospect of Zometa and wonders if it is essential or overboard

PETER MICHAELS diagnosed with Low Risk disease at age 46 he was headed for surgery but instead chose Active Surveillance and is now has almost completed his second year

BARRY LITCHFIELD treating a rising PSA for ten years with alternative medicines has resulted in widespread bone metastasis

CHRIS BUTTERISS Gold member recommenced ADT (Androgen Deprivation Therapy) after failed RP (Radical Prostatectomy) and salvage EBRT (External Beam Radiation Therapy) with excellent results

CHRIS O’DELL three years after RP (Radical Prostatectomy) no change – ED dealt with by injections

REINHARD POLLER three years after PBT (Proton Beam Therapy) he is puzzled why so many men choose surgery

FRANK XG his PSA is down after his IMRT (Intensity Modulated Radiation Therapy) but has had a liver transplant

FRED WEINBERG makes it to Silver five years plus from his RP (Radical Prostatectomy) with no problems

RONALD JOHNSON seventeen months after RALP (Robotic Assisted Laparoscopic Prostatectomy) he feels his ED is getting better

FRANK P chose CyberKnife® and is very happy with the results

BOB JONES Platinum member diagnosed in 1993 and chose EBRT (External Beam Radiation Therapy) and ADT (Androgen Deprivation Therapy) which ultimately failed and he chose Cryotherapy as his salvage therapy

TOMAS BERGMAN very happy with his PSA after PBT (Proton Beam Therapy) in Florida – and no side effects

WALTER R still has ED after his RALP (Robotic Assisted Laparoscopic Prostatectomy)

TOM KEATING still on Avodart plus Active Surveillance and his PSA is down

JOSE OCHOA concerned about a rise in his PSA from 0.01 to 0.04 after his RALP (Robotic Assisted Laparoscopic Surgery) and is looking for men in a similar position

MICHAEL PENNY Hits Silver status and has had a second biopsy on his Active Surveillance choice with no sign of progression

KENT WILLIAMS is twelve months out of his PBT (Proton Beam Therapy) at Loma Linda and like so many graduates has fond memories of his time there despite a small PSA bounce

RICK DANCER has included links to the institute that delivered his Calypso® therapy to show how it was done

JOHN P had his RALP (Robotic Assisted Laparoscopic Surgery) last month and found it difficult to sleep afterwards

PAUL TWEEDY chose RALP (Robotic Assisted Laparoscopic Surgery) and is on the recovery path

REVISED PAGES:

A couple of additions:

1. PHOTODYNAMIC THERAPY link to a trial recruiting in New York for a variance on the therapy termed vascular targeted photodynamic therapy

2. COMPLEMENTARY AND ALTERNATIVE MEDICINE – additional link to the Holistic Medicine page at Smilow Comprehensive Prostate Cancer Center

3. HIFU (High Intensity Focused Ultrasound) includes link to HIFU trial for men with failed EBRT (External Beam Radiation Therapy)

4. THE ELEPHANT IN THE ROOM added a link to the Wall Street Journal article The Prostate Cancer Quandry


All the best

Terry in Australia

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